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Health For Mzansi

Children with autism have nowhere to go in EC

Having a child with autism comes with its own unique challenges. But parents in Gqeberha are faced with additional hardships because the one available public school is full and some families have been waiting for years. In the meantime, parents have to work and earn a living and can't afford for their children to be sitting at home

by Joseph Chirume
14th March 2023
in Trending
Reading Time: 4 mins read
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Children with autism have nowhere to go in EC

Raising a child with autism comes with its own unique challenges. Mary Moeketsi's son was only diagnosed with autism at the age of 22. Photo: Supplied/Health For Mzansi

Gqeberha parents of children who have autism want the provincial education department to do more to create more placements at Quest School for Learners with Autism. Quest is the only government school in Gqeberha that specialises in the education of children with autism aged five to 18. There are currently 133 children on the waiting list at Quest. Autism Matters South Africa says there are more than 1 000 children with autism in the Eastern Cape, some of whom have been on the waiting list for schools for several years.

Parents of children who have autism are up in arms with the provincial education department and believe more should be done to create more placements at Quest School for Learners with Autism.

Quest is the only government school in Gqeberha that specialises in the education of children with autism aged five to 18.

There are currently 133 children on the waiting list at Quest, said Mali Mtima, spokesperson for the Eastern Cape Department of Education.

Alternative options

Mtima said that later in the year, the department plans to open “an autism wing” at Merryvale Special School in Gqeberha. This school currently only caters for children with severe intellectual disabilities.

“We have already placed 28 learners at Merryvale and allocated four educators for the Autism Wing,” said Mtima.

But Nobathembu Qosho, founder of Autism Matters South Africa, said that only two of the 11 public special needs schools in the province cater for autistic learners.

“There are too many children on the waiting list. Quest is the only school offering boarding facilities for children with autism and the school is overcrowded. There are more than 1 000 children in the province, some have been on the waiting list for several years and the number grows each year,” said Qosho.

She said research done by Autism Matters in 2022 revealed that there are far more children with autism waiting for placement than the numbers recorded by the department. “Many parents are sitting at home with their children out of ignorance or the lack of relevant information,” she said.

Taking action

In an effort to have their plight heard, a dozen members of Autism Matters met in Wells Estate last Saturday to discuss their challenges in seeking help from the department. This also followed a protest outside the Gqebera City Hall in April last year, calling for the department to provide more schools for autism and provide occupational therapy at homes, among other things.

Qosho said, “We have been lobbying for the government to donate abandoned schools so we can use them to teach our children. We have qualified educators willing to do the job.”

Nontebeko Mtakati from KwaDwesi said she has been sent from pillar to post for several years to find a place for her son who is now 15. “Educators at Luthando Luvuyo Special School said my son was troublesome so I had to pull him out. It is a school for [physically] disabled children not specifically for those with autism,” said Mtakati.

Heavy on the pocket

Delicia Petersen from Kleinskool said she has spent a lot of money enrolling her nine-year-old daughter at different centres for disabled children.

“I enrolled her at a school in Chatty, paying R300 per month. Educators at the school were not trained on autism, so they complained about her behaviour. I then enrolled her at Sinako special school paying R1,500 per month. The department called me for her to do an assessment in 2018 and again invited me in 2022 but I was on maternity leave. That was the last time I heard from them.”

Mtima said the department has since availed some classrooms at the Coega Primary School in Wells Estate for Autism Matters to use. They are teaching about 27 children with limited resources.

This article was written by Joseph Chirume and first published by GroundUp.

ALSO LISTEN: There’s no shame in raising an autistic child

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Tags: AutismChildrenEastern Cape
Joseph Chirume

Joseph Chirume

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HIV and initiation: Supporting boys through cultural rites Security fails as gangs target Eastern Cape clinics Dr Makanya blends spiritual healing with art therapy Canola oil: A heart-healthy choice for your kitchen No more pain! Tackle the torment of toothaches How smoking causes harmful bacteria in your mouth Discover delicious, healthy dishes that will make your heart sing Rediscover the joy of creamy pap with chicken livers